A child can simultaneously break your heart and set it free. Such is the case with Jennifer Walker, born with the rare Rubinstein-Taybi syndrome, which severely challenges her mental and physical capabilities, even as it piques her mother’s dread of the unknown. Jennifer’s is a disorder that most doctors have never encountered, one that informs the story of Every Least Sparrow.On the night of her birth, the Walkers’ pediatrician lays out a new reality that will upend their household. He speaks of deformities that make no sense: spatula thumbs, cathedral palate, webbed neck, beak nose, a bird face.Confused and frightened, baby in hand, determined to find healing and understanding, Jennifer’s mother, a journalist writing about life in their small midwestern town, embarks on a quest that takes them from doctor to doctor, hospital to hospital, and state to state.It’s a quest filled with surgeries, therapies, and educational interventions, mitigated by Jennifer’s love of music and her fun, curious obsession with the Titanic – one that forces her mother to examine her own prejudices. Her combined private and professional lives impact Jennifer’s mother in a profound way, creating for her a new understanding of what it means to be wife, mother, and human being.Filled with natural self-esteem, Jennifer never realizes she is different from others. Instead, she becomes their teacher, proving that disability is but a notion. Spirited and impish, brave and loving, she takes her obstacles ...