This is the story of one Mom and one very special family that had born into it one very special little girl who at this writing is waiting for a multi-organ transplant so that she can visit London and Paris, and so that she can see the world beyond the four corners of a hospital room. Delight in the joys and cry for the sorrows of this mother and family for an infant born with a very serious problem that for the most part is not given the recognition it deserves. Kourtney Najjar has neurogenic pseudo obstruction and osteopenia, and every single day since her birth, she has struggled with pain. Find out how one mom fought and continues to fight to get answers for her youngest child, and how she fights the system and juggles the schedules of her other three active children, while making choices no parent ever wants to make. Mother, father, and children all are a part of this process, and the journals inscribed herein are the true thoughts and feelings of the moment; and this book is as...